Contact

I wanted to set up an email for people looking to send in questions or comments can reach me. If you would like to contact me about Hunter and his Journey please feel free to email:

momoftof@gmail.com

Comments

Post a Comment

Popular posts from this blog

Hunters Journey Update 4/3/2020 and Covid Update

Image
So with all of this Covid craziness going on, I am sure some people are wondering how things are going. I am first going to give an update as to how our little guy is doing, then go into some of the challenges that we are starting to face with the disease hitting and potentially giving birth during a pandemic. Hunter had a good week! On Monday, March 30 th , 2020 we received a phone call letting us know that the full amnio results finally came in. I have been waiting for this call for over a week! The week prior, Children’s Hospital scheduled us to meet with a genetics specialist at their facility. Due to this I knew the results had most likely came in and were not good, potentially saying that he had DiGeorge Syndrome. On Monday when I finally received the call, everything was normal! They could not find any reason for his Tetralogy, but are very hopeful now that once he overcomes the Tetralogy he will thrive! Children’s preemptively assumed that the test would come back as possib...
Read more

Introduction

We have now known that our little man, Hunter will be born with a very severe and rare heart defect known as Tetralogy of Fallot for about 2 weeks. Upon finding this information out, I did like any person would do, and started searching the internet for as much knowledge, experiences, and recommendations as I possibly could get on this condition. While I was able to find a lot of information regarding the condition itself, I was surprised at the lack of support I found for parents dealing with this. I found I had a million questions that I couldn’t find answers to that the Doctors didn’t have answers to and they are revolved around one large question. What does being a parent to a child of Tetralogy of Fallot look like? What can we expect in the next year, 5 years, and beyond? The answer to this was surprisingly lacking. There was all the normal medical advice, but where were the details from actual parents about their concerns or experiences. Where are the actual accounts detailing...
Read more

How Hunters Journey Started

Image
Hunters’ journey starts the same as most little kids. My husband and I had decided to start trying to add to our family in June 2019. We were very blessed and only had to wait 4 months until we were gifted our little Hunter. On October 21 st we found out we were expecting our first child and of course were elated. We will never know when Hunters condition came to start to develop. Was it predetermined in his genetics? Was it something that happened in the following days? We will never know, and unfortunately the doctors also do not have an answer. By most accounts, Hunter had a fairly normal start. He was conceived on our anniversary trip in Mexico and we found out about him a short three weeks later. Right after we found out about him, as a family we did endure an immense amount of stress, losing my husband mother, but our Doctors are fairly certain the stress sustained through these early days did not contribute to Hunters condition. Any hints that this would not continue as ...
Read more