Hunters Tetralogy of Fallot Journey

So with all of this Covid craziness going on, I am sure some people are wondering how things are going. I am first going to give an update as to how our little guy is doing, then go into some of the challenges that we are starting to face with the disease hitting and potentially giving birth during a pandemic. Hunter had a good week! On Monday, March 30 th , 2020 we received a phone call letting us know that the full amnio results finally came in. I have been waiting for this call for over a week! The week prior, Children’s Hospital scheduled us to meet with a genetics specialist at their facility. Due to this I knew the results had most likely came in and were not good, potentially saying that he had DiGeorge Syndrome. On Monday when I finally received the call, everything was normal! They could not find any reason for his Tetralogy, but are very hopeful now that once he overcomes the Tetralogy he will thrive! Children’s preemptively assumed that the test would come back as possib

Hunters’ journey starts the same as most little kids. My husband and I had decided to start trying to add to our family in June 2019. We were very blessed and only had to wait 4 months until we were gifted our little Hunter. On October 21 st we found out we were expecting our first child and of course were elated. We will never know when Hunters condition came to start to develop. Was it predetermined in his genetics? Was it something that happened in the following days? We will never know, and unfortunately the doctors also do not have an answer. By most accounts, Hunter had a fairly normal start. He was conceived on our anniversary trip in Mexico and we found out about him a short three weeks later. Right after we found out about him, as a family we did endure an immense amount of stress, losing my husband mother, but our Doctors are fairly certain the stress sustained through these early days did not contribute to Hunters condition. Any hints that this would not continue as

We have now known that our little man, Hunter will be born with a very severe and rare heart defect known as Tetralogy of Fallot for about 2 weeks. Upon finding this information out, I did like any person would do, and started searching the internet for as much knowledge, experiences, and recommendations as I possibly could get on this condition. While I was able to find a lot of information regarding the condition itself, I was surprised at the lack of support I found for parents dealing with this. I found I had a million questions that I couldn’t find answers to that the Doctors didn’t have answers to and they are revolved around one large question. What does being a parent to a child of Tetralogy of Fallot look like? What can we expect in the next year, 5 years, and beyond? The answer to this was surprisingly lacking. There was all the normal medical advice, but where were the details from actual parents about their concerns or experiences. Where are the actual accounts detailing

Travis and Ashleigh Foster have been very blessed and were very excited to announce the coming arrival of their first child, a son they will be naming Hunter in June 2020. Unfortunately during this time that should be one of the happiest of their lives, they received some extremely devastating news. At a routine 20 week ultrasound, the Doctors found some concerning items on baby Hunters heart and ordered an Echo-cardiogram at Children's Hospital in Aurora, CO. On February 28th, the team at Children's Hospital diagnosed baby Hunter with a very serious and very rare Congenital Heart Defect known as Tetralogy of Fallot. Tetralogy of Fallot is a rare condition caused by a combination of four heart defects that are present at birth. The four conditions are: Pulmonary valve stenosis.  Pulmonary valve stenosis is a narrowing of the pulmonary valve — the valve that separates the lower right chamber of the heart from the main blood vessel leading to the lungs (pulmonary artery).